Patient data collection for chronic respiratory diseases and home use of respiratory devices
The number of patients who need mechanical respiratory support at home is growing worldwide. The Hellenic Network of Mechanical Ventilation (HR-HMV) is a national initiative that began in 2017 and is supported by medical and research institutions across the country. Through a secure web platform, the network’s centers record data in a common format for adults and children with chronic respiratory diseases who use respiratory devices at home. Data from more than 8,000 patients have already been collected. The aim is to give an accurate picture of the situation in Greece, in terms of patient numbers, diagnoses, and the conditions under which mechanical ventilation and other home respiratory support devices are used, so that the data can support clinical practice, epidemiological research, and health policy planning.
The network
Home Mechanical Ventilation Network
The Hellenic Network of Mechanical Ventilation (HR-HMV) has operated since 2017 under the auspices of INAB|CERTH, which holds organization-wide ISO 27001 certification. It aims to systematically document the use of mechanical ventilation and home respiratory support devices at national level, using standardized data collection protocols. Its operation ensures full compliance with the General Data Protection Regulation (GDPR) and the organization’s relevant information security policies.
Network
features
01.
National coverage
21 centers across Greece
02.
Structured data collection
Commonly agreed data fields across centers
03.
Statistical analysis
Statistical studies conducted for Greece
04.
Data security
GDPR & ISO 27001
05.
Research value
2 publications in international journals
06.
Open network
New centers and physicians can join
The platform
The HR-HMV platform is accessible only to authorized clinical users. Each center and physician can access only the data of their own patients and can enter and update records through structured data collection forms.
- Secure login
- Isolated data
- Structured data collection
- Central management
PUBLICATIONS
- (2022). “Hellenic registry of patients with home mechanical ventilation (HR-HMV): profiling sleep Apnea-Hypopnea syndrome patients across Greece.”, BMC Med Inform Decis Mak, 22(1), 257. https://doi.org/10.1186/s12911-022-01989-1
Collaborating organizations
